Tuesday, April 30, 2013

The countdown is on!!!

The excitement has been building since a cold day in February when we were given the news. . ."Hi Mrs. Walter, because Alyssa has Cystic Fibrosis, she qualifies for a wish from Wishes Can Happen.  Are you interested?"

Interested?   I didn't know.  On one hand, who wouldn't want the chance to give their kids a dream drip to wherever they wanted to go?  On the other hand, what did this mean?   My 7 year old youngest child who was born with Cystic Fibrosis has had a tough seven years, but she is doing well.  Seven hospital stays, 4 long courses of IV antibiotics, one feeding tube and countless hours spent each day doing breathing treatments and airway clearance had become our life.  But we have adjusted.  Its our normal.   And overall, Alyssa is the healthiest and most stable (said in a tiny whisper) she has ever been.  Was this the right time to fill her wish?   We  spent a while thinking about it, but finally decided that YES, this was the right time.  She is young enough for the trip to be magical.  But old enough that she would remember this trip of a lifetime.  She is healthy enough to really enjoy the trip....a health we cannot take for granted with a progressive disease like CF.   Her brothers are also at great ages to enjoy this trip.   We all think this is the PERFECT time for our trip.

And so the show got on the road.  Wishes Can Happen took over and began our planning.   Slowly we began hearing about airlines, Give Kids the World, and all the amazing parts of our trip to come.   And now after several months of waiting, we have just a few more days until we leave.  

This private blog is for our friends and family who want to follow our adventure.   So welcome!!!